My Story

Living with cystic fibrosis (CF) can be relentless and exhausting at times. Learn what life is like for children and adolescents living with this condition.

Educators who have experience teaching students with CF can also share ideas on how you can give effective support.

If you have a story you would like to share we would love to hear from you.

Wear Red For CF

Wear Red For CF

I have a younger brother who has cystic fibrosis (CF) and I really wanted to organise a fundraising and awareness raising day for him at my school. I asked the school when I was in Year 7 if I could organise a day for CF but there was a bit of a waiting list few years...

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Jaxon Urlich’s Story

Jaxon Urlich’s Story

On Sunday, 15 November 2015, a fifteen-year-old schoolboy stormed up the 88 levels of the Eureka tower in the impressive time of 16 minutes, 52 seconds. It was the second year in succession that Jaxon Urlichs from Manor Lakes in Melbourne’s north-west had...

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Kathleen, Katrina and Alexis  

Kathleen, Katrina and Alexis  

Kathleen works as a Year 3 teacher at Assumption Catholic College in Mandurah and taught Alexis, who has CF, in her class in 2016. Kathleen came to teaching later on in life. She was inspired to become a teacher because she was frustrated that she couldn’t help her...

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Life After High School

Life After High School

At 18, Marina is very level headed and pragmatic. It is so inspiring to also meet a person who is happy with her life and who works so hard to achieve her goals despite having the extra burden of doing time consuming treatment for cystic fibrosis (CF). I am studying a...

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Zoe’s Story

Zoe’s Story

Zoe has just turned 15 and is very excited about starting Year 9 at high school this year. Zoe has cystic fibrosis (CF). "Zoe was diagnosed shortly after the standard heel prick test when she was born," says Zoe's mum Trish. "We were in the hospital daily for a week....

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Zahra’s Story

Zahra’s Story

Hi I’m Zahra, I am 13 years old so I’m going into Year 8 this year. I love performing drama, being with animals and kids. When I’m older I would love to be an actress or a kindergarten teacher. I have CF (cystic fibrosis). If I could have a...

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Ned’s Story

Ned’s Story

Hi, my name is Ned and I am 10 and have cystic fibrosis (CF). This is a photo of me with my brother Lucas, we are both pretty good basketballers. There is one year between me and my brother. We do most things together. I was diagnosed with CF the day after I was born....

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