My Story

Living with cystic fibrosis (CF) can be relentless and exhausting at times. Learn what life is like for children and adolescents living with this condition.

Educators who have experience teaching students with CF can also share ideas on how you can give effective support.

If you have a story you would like to share we would love to hear from you.

Life at boarding school when you have cystic fibrosis

Life at boarding school when you have cystic fibrosis

(Article taken from REDteen Magazine 2014) A few years ago a young lady with CF, Lilly (aged 15 at the time) was asked some questions about what it was like to live at boarding school while managing the treatment she needed to do for her cystic fibrosis (CF). 1. What...

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PICC Lines at school

PICC Lines at school

My name is David and I'm 6 years old and in Year 1 at Weld Square Primary School. I have a little brother Oliver who's 5 and is in kindy. I like to play with my friends. I especially like running and playing "it". I also like to play soccer because I really like...

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Life After High School

Life After High School

At 18, Marina is very level headed and pragmatic. It is so inspiring to also meet a person who is happy with her life and who works so hard to achieve her goals despite having the extra burden of doing time consuming treatment for cystic fibrosis (CF). I am studying a...

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Ned’s Story

Ned’s Story

Hi, my name is Ned and I am 10 and have cystic fibrosis (CF). This is a photo of me with my brother Lucas, we are both pretty good basketballers. There is one year between me and my brother. We do most things together. I was diagnosed with CF the day after I was born....

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