Hi, my name is Ned and I am 10 and have cystic fibrosis (CF). This is a photo of me with my brother Lucas, we are both pretty good basketballers. There is one year between me and my brother. We do most things together.
I was diagnosed with CF the day after I was born. I had Meconium Ileus and was taken to the Royal Children’s Hospital, Melbourne for surgery. I stayed there for about 13 weeks until I was strong enough to come home. I’ve been in and out of hospital since then. Some years are better than others. I seem to go for a tune-up every 18 months but sometimes I’ve been in twice a year.
I get frustrated when I’m in hospital. I like to run around and stay active and I miss playing with my brother and friends and being at home. I like being home doing my own thing and I really don’t like having the IV drip in my arm all the time. It makes me feel claustrophobic.
I really like the CF team especially my specialist Dr. Colin Robertson, who always makes me feel calm inside. I can get very anxious about having CF and what this means. I don’t like people staring at me when I take my enzymes.
I love to keep active. My brother and I play basketball out the front every night after school. I’m also in a trampoline squad where we both train for four hours a week. I know by keeping active I’m helping keep my lungs strong. When I do get sick, I get very tired and I find it harder to run on the court for the whole basketball game. I do physiotherapy every morning before school and take lots of tablets throughout the day. Sometimes I get over taking tablets but most of the time it’s ok.
I want to be an NBA player. I worry that my CF won’t let me grow to be tall enough. I try to eat as much as I can so I’ll grow taller. I’m going to be an NBA player.